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KMID : 1148320220070010001
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Journal of Korean Association for Qualitative Research
2022 Volume.7 No. 1 p.1 ~ p.11
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The Experience of Family Members Caring for Ventilator-Assisted Patients at Home: A Qualitative Study
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Kim Soo-Jeong
Kim Hyang-Sook
Seo Min-Hye
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Abstract
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Purpose: This study was conducted to identify the experiences of families caring for patients with home mechanical ventilation. The question was, “What is the caregiving experience of a family who has a member with home mechanical ventilation?”.
Methods: This study was a qualitative study to explore and describe the implications of experiences of families caring through a phenomenological approach. One-on-one in-depth interviews were conducted with family caregivers who worked as full-time for caring for patients with home mechanical ventilation, and the results were analyzed using Colaizzi’s (1978) phenomenological method. Participants’ relationships to patients were 1 spouse, 1 father, and 6 mother. The ages of the participants were between 33 and 59, with an average of 45.1.
Results: In this study, family members’ caregiving experience was emerged. Analysis revealed the following themes: Felt burdened but had to accept it; Seized by fear; The weight I must bear alone; Everything is difficult and unfamiliar; Still, my home; and Sorry for the other family members. It was found that caregivers had decided to discharge their loved ones from the hospital out of a sense of duty.
Conclusion: The families took care of the patients with responsibility and love. The study results should help with the understanding of a family with a member with home mechanical ventilation and should be used to develop nursing, mediating, and consulting programs for these caregivers.
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KEYWORD
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Home, Mechanical ventilation, Family caregivers, Experience, Qualitative research
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